So I really meant to update 2 days ago...I've had three days of doctor's appointments and here is what happened..
On Monday morning my mom, nana and I went to Dr. Allon's office. Dr. Allon is a fertility doctor who is going to help me harvest eggs before I don't any more chemotherapy treatment. We talked for a bit about what the procedure is and when we should start the hormones. Basically I have a small window to do this procedure because I have to be well enough to do it (meaning my counts need to be high) and do it before chemotherapy. I have ten days of hormone injections and then two days later Dr. Allon will go in (while I am under anesthesia) and extract the eggs. The hormone injections are just an increase dose of what is already in my body and this will trick my body into producing more eggs. So instead of my ovaries producing one egg a month we are going to try and have them produce a years worth of eggs...so about ten eggs. He did an ultrasound to view my ovaries and count how many eggs I have right now; my right one is good but my left one is a little small and didn't have as many follicles in it. It could be from the chemotherapy or just how it was before all of this happened. Either way he should be able to get about ten eggs. Once extracted he will freeze them. The eggs can be frozen indefinitely until I decide to try and have a baby. They will then choose the best two eggs, fertilize them and then put them back into me. Doing it like this gives them a 40-50% chance of the pregnancy taking and going to full term. Another way to do it is to fertilize the eggs BEFORE freezing them; this gives them a 65% or more chance of working. But because me and Cassidy aren't engaged or married it makes things a little more difficult because there are strings attached with these embryos. So within a couple of weeks we will decide what the best option to do and hopefully save some future babies of mine. I am planning on starting the hormone injections while I'm still in Florida and have the procedure the week before I start chemotherapy. That way, even if Travis is a match and I have to start the stem cell transplant stuff, we have the time to extract the eggs.
On Tuesday I went in for blood work and got my counts. My WBC count is decreasing, like it should, so I just have to be careful about what I eat and who I'm around. My counts will continue to decrease this week and hopefully start going back up in time for me to fly to Florida. That's right, I'm going to Florida for Travis' graduation!!!! I can't believe I actually get to go! I'm so excited to see everyone for the week that I'll be there. We are having the party at my uncle's fire station on Anna Maria island....it will be good to be on an island again :) My mom, Cassidy and I leave for Florida on the 3rd of August and we will be there for a week. :) :) :) :) :)
Tuesday was a good day because my dad has finally gotten here after 3 weeks of business and travel all over the nation. It is SO good to see him!! I definitely missed him a lot. He will only be here until tonight (Thursday night) before flying back to Hawaii to fly to Florida with Chelsea and Maile (who I am VERY excited to see in Florida!) So that night we had a dinner party at Jan and Janet's house and had my cousin Tiffany and Josh come over too! We all hung out while Cassidy went to pick up my friend Lilja who I've known from my travels to London. She will be here until Saturday! So I am very excited and happy to have these people around me this week :)
Yesterday I was at MD Anderson alllllll day long. At 9:00 am I had a lung test to make sure my lungs can handle the stem cell transplant. Then at 11:30 I had a OB-GYN appointment to talk about another form of birth control that is like putting my ovaries to sleep for 3 months at a time...essentially it puts me into menopause for 3 months per shot. This will hopefully protect my ovaries from taking in as much chemotherapy...but nothing is certain. This is my best bet at hopefully saving them from failing. After that Cassidy, Lilja and I walked to Chipotle for lunch; we walked around the medical center and were in awe with the beauty of all the buildings that are hospitals. Lilja said it was like walking around downtown Seattle. We had to go back to MDA for a heart scan to make a base line of where my heart strength is now and how it is affected during my transplant. At about 4:00 pm we were finally done and went home. We met up with my mom, dad, Jan and Janet for dinner at this amazing restaurant called the Backstreet Cafe. They had an amazing wine list, amazing food, amazing service...just an amazing night! Cassidy, Lilja and I went to see Captain America after dinner which was a nice way to end the night. Good movie, full belly and good company.
Today we are planning on going to an art museum while Cassidy works. Lilja is an art major and while we were in London we went to 6 museums together for 5 hours at a time. I'm excited to go! There is also a zoo and a beautiful park. I think today will be a good day :)
I love you all and will update soon!
-savy
Thursday, July 28, 2011
Sunday, July 24, 2011
SOOOOO ITCHY!!!!
Hello!
I am on day six of consolidation treatment; I finished my chemotherapy late Thursday night after a grueling 4 days of nausea and fatigue. Since getting the long line catheter in my right arm, my and I have had to attend classes that teach you how to take care of it at home so you don't have to keep going to the hospital all the time. MD Anderson has been very helpful in the sense that they want you to be able to take care of yourself and not depend on the nurses to change dressings or flush your line. So my mom got certified to be able to change the caps and flush the lines on Thursday; that way we wouldn't have to go to the hospital just to have them remove the chemotherapy from my port. She was able to do it without killing me so I think that's a step in a positive direction. The next day (Friday) we had to go to the hospital early to get blood drawn (no more pokes!) and then see my doctor about my counts and what to expect in the next week. My counts were still very good but they said by next Thursday (07/28/11) my counts should be at their lowest. That means no immune system for me. I have an appointment on Tuesday to have my counts checked and then again on Friday. I just have to be careful and aware of myself and my surroundings. I am hoping to not get ANY mouth sores and try and get through these next two weeks without any problems. The doctor also said that my counts should be good enough by August for me to go to Travy's graduation! Very excited about that. Cassidy also got those dates off from work so he will get to come too! I am so excited to see everyone and just hope that I'm feeling well while I'm there.
Tomorrow I meet with my fertility doctor who said in two weeks I can start the process to harvest my eggs (after he checks to make sure my ovaries are still working). He said it should only take 10-12 days which is good timing because by then we should know if my brother and sister are matches or not. If they are then as soon as the harvesting is done I start the process for the stem cell transplant. If not...then I get another round of chemo :( I found out on Friday why it is so important to keep me in remission; apparently, after you get into remission once and you let the cancer come back it is harder to get you back into remission for the second time. The doctors would have to use different chemotherapies to try and killthe cancer again because the original chemo wouldn't work as well again. This is why they have to keep me on chemotherapy until my transplannt...and that is why I hope my brother or sister is a match (and because I would get to see them in Texas :D)
Yesterday I met my Aunt Dorothy and Aunt Drexel who live about 30 minutes away in Pearland (pronounced PearAHland :D). Aunt Drexel is 99 years old and as spunky as ever. She rode a horse for her 99th birthday! We are going to meet both of them and Dorothy's family today on the boardwalk of Clearwater (it's a city by the gulf). So I am excited to go explore a city I haven't been to yet :) Also, it is Cassidy's day off so he will get to meet them as well.
Now, I don't know if it is due to the chemotherapy, lower blood counts or my hair falling out but I AM SO ITCHY!!!! I think it is my hair cells dying, but my legs, arms and body are just driving me insane with inchiness. Even the skin until my PICC line dressing is ichy. I'll probably go bald just from scratching everything! If anyone has any remedies to help decrease the ichiness I will surely try anything!
My dad and my friend Lilja come on Tuesday! I am so excited to see both of them...I feel like it's been such a long time since I saw my dad for the 4th of July. It's been wonderful having Nana here as well and it will be sad to see her go on Wednesday. I love that I have been meeting family that live so close to me in Texas; it's definitely nice to have them nearby! I have been getting my appetite back and eating again so I am just hoping it doesn't go away! Oh! Travis finally got his HLA typing kit sent out to the hospital (after waiting a week for it to arrive!) so hopefully we will find out who is my match soon!
i love you all and will update again soon!
-Savy
I am on day six of consolidation treatment; I finished my chemotherapy late Thursday night after a grueling 4 days of nausea and fatigue. Since getting the long line catheter in my right arm, my and I have had to attend classes that teach you how to take care of it at home so you don't have to keep going to the hospital all the time. MD Anderson has been very helpful in the sense that they want you to be able to take care of yourself and not depend on the nurses to change dressings or flush your line. So my mom got certified to be able to change the caps and flush the lines on Thursday; that way we wouldn't have to go to the hospital just to have them remove the chemotherapy from my port. She was able to do it without killing me so I think that's a step in a positive direction. The next day (Friday) we had to go to the hospital early to get blood drawn (no more pokes!) and then see my doctor about my counts and what to expect in the next week. My counts were still very good but they said by next Thursday (07/28/11) my counts should be at their lowest. That means no immune system for me. I have an appointment on Tuesday to have my counts checked and then again on Friday. I just have to be careful and aware of myself and my surroundings. I am hoping to not get ANY mouth sores and try and get through these next two weeks without any problems. The doctor also said that my counts should be good enough by August for me to go to Travy's graduation! Very excited about that. Cassidy also got those dates off from work so he will get to come too! I am so excited to see everyone and just hope that I'm feeling well while I'm there.
Tomorrow I meet with my fertility doctor who said in two weeks I can start the process to harvest my eggs (after he checks to make sure my ovaries are still working). He said it should only take 10-12 days which is good timing because by then we should know if my brother and sister are matches or not. If they are then as soon as the harvesting is done I start the process for the stem cell transplant. If not...then I get another round of chemo :( I found out on Friday why it is so important to keep me in remission; apparently, after you get into remission once and you let the cancer come back it is harder to get you back into remission for the second time. The doctors would have to use different chemotherapies to try and killthe cancer again because the original chemo wouldn't work as well again. This is why they have to keep me on chemotherapy until my transplannt...and that is why I hope my brother or sister is a match (and because I would get to see them in Texas :D)
Yesterday I met my Aunt Dorothy and Aunt Drexel who live about 30 minutes away in Pearland (pronounced PearAHland :D). Aunt Drexel is 99 years old and as spunky as ever. She rode a horse for her 99th birthday! We are going to meet both of them and Dorothy's family today on the boardwalk of Clearwater (it's a city by the gulf). So I am excited to go explore a city I haven't been to yet :) Also, it is Cassidy's day off so he will get to meet them as well.
Now, I don't know if it is due to the chemotherapy, lower blood counts or my hair falling out but I AM SO ITCHY!!!! I think it is my hair cells dying, but my legs, arms and body are just driving me insane with inchiness. Even the skin until my PICC line dressing is ichy. I'll probably go bald just from scratching everything! If anyone has any remedies to help decrease the ichiness I will surely try anything!
My dad and my friend Lilja come on Tuesday! I am so excited to see both of them...I feel like it's been such a long time since I saw my dad for the 4th of July. It's been wonderful having Nana here as well and it will be sad to see her go on Wednesday. I love that I have been meeting family that live so close to me in Texas; it's definitely nice to have them nearby! I have been getting my appetite back and eating again so I am just hoping it doesn't go away! Oh! Travis finally got his HLA typing kit sent out to the hospital (after waiting a week for it to arrive!) so hopefully we will find out who is my match soon!
i love you all and will update again soon!
-Savy
Wednesday, July 20, 2011
Consolidation
I am in my new apartment! We have furniture, beds, dining table...we pretty much got everything done except for some little things. We luckily got all that shopping done (spent 4 hours in target...) before I started my chemotherapy on Monday evening. I think the beet thing about this weekend was a house warming gift from two, new, but amazing friends that have been nothing but helpful since they first met us 12 days ago. I am so appreciative of these two women (you know who you are!!) and I hope to pay it forward to someone else one day who needs my help. I don't know what we would have done without them! They have taken care of us in every way and I hope we can do the same for them when they need it :)
Monday afternoon around 1:30 pm my mother and I showed up at MD Anderson so that I could get my long line catheter put into my arm again so that I can get hooked up to chemotherapy later. I go feeling light hearted and easy; when they did this in the hospital it didn't hurt at all and I loved having it because I didn't have to get poked anymore. But this was an entirely different experience. Maybe my veins were too small that day but it hurt; sickening pressure that made me wish I had taken the Versed that was offered to me to help me relax. Every time I have a procedure it makes me remember that I'm sick, that I have to start chemotherapy again, always make me frustrated and upset...so I definitely started to freak out a little bit when she was putting the PICC line in. It was more sore afterwards too; it took until today that it doesn't hurt so much when I move my arm. I got done with that procedure at 5 pm and so we waited downstairs for my first chemotherapy appointment at 6. We haven't eaten since the morning and I didn't get done with chemo until 9:30pm. I was very worn out and all I wanted to do was go to sleep. Cassidy made sure I ate some food before bed :).
Yesterday was tough; only one day on chemotherapy and I already felt like I did in the hospital back on Oahu. I was nauseous all day and didn't want to do anything but lay down. The anti-nausea medicine I have doesn't work for me so I'm stuck laying down and waiting for the day to be over. I hope today, with nana coming in the afternoon, is a better day for me and I don't feel so sick. I'm trying to eat and be healthy so that I don't lose the 6 pounds I gained back.
I am excited to see my nana and have her finally meet Cassidy...maybe if I'm feeling up to it we will surprise him at work. Terry is planning on coming this Saturday if I am feeling up to it and then my dad and friend Lilja come next Tuesday for the rest of the week :) I am excited to see all those I haven't seen in what feels like years...this whole experience feels like it's been going on for years. It feels good to be settling into our new apartment; I feel really comfortable here and I am ready to be here for a year to figure mine and Cassidy's life out after all the treatments are over.
Ok..time to lay down. Miss you all and love you.
-sav
Monday afternoon around 1:30 pm my mother and I showed up at MD Anderson so that I could get my long line catheter put into my arm again so that I can get hooked up to chemotherapy later. I go feeling light hearted and easy; when they did this in the hospital it didn't hurt at all and I loved having it because I didn't have to get poked anymore. But this was an entirely different experience. Maybe my veins were too small that day but it hurt; sickening pressure that made me wish I had taken the Versed that was offered to me to help me relax. Every time I have a procedure it makes me remember that I'm sick, that I have to start chemotherapy again, always make me frustrated and upset...so I definitely started to freak out a little bit when she was putting the PICC line in. It was more sore afterwards too; it took until today that it doesn't hurt so much when I move my arm. I got done with that procedure at 5 pm and so we waited downstairs for my first chemotherapy appointment at 6. We haven't eaten since the morning and I didn't get done with chemo until 9:30pm. I was very worn out and all I wanted to do was go to sleep. Cassidy made sure I ate some food before bed :).
Yesterday was tough; only one day on chemotherapy and I already felt like I did in the hospital back on Oahu. I was nauseous all day and didn't want to do anything but lay down. The anti-nausea medicine I have doesn't work for me so I'm stuck laying down and waiting for the day to be over. I hope today, with nana coming in the afternoon, is a better day for me and I don't feel so sick. I'm trying to eat and be healthy so that I don't lose the 6 pounds I gained back.
I am excited to see my nana and have her finally meet Cassidy...maybe if I'm feeling up to it we will surprise him at work. Terry is planning on coming this Saturday if I am feeling up to it and then my dad and friend Lilja come next Tuesday for the rest of the week :) I am excited to see all those I haven't seen in what feels like years...this whole experience feels like it's been going on for years. It feels good to be settling into our new apartment; I feel really comfortable here and I am ready to be here for a year to figure mine and Cassidy's life out after all the treatments are over.
Ok..time to lay down. Miss you all and love you.
-sav
Saturday, July 16, 2011
Busy Busy Busy
Oh my lord we have been busy NONSTOP this whole week! On Wednesday my mom and I drove to Austin to pick up Cassidy who flew in Tuesday night. Angel and Tom picked him up at the airport and he stayed the night at their house. So Wednesday morning we head out with snacks and water and start the 3 1/2 hour drive. We decided to stay the night at Angel's and then drive back in the morning in time for my 1:30 pm appointment with my stem cell transplant doctor. Wednesday night we went out to eat with Angel, Tom and their 6 year old daughter Teagan who is very cute! I had a great night spending time with them; it's nice getting to know my family. Thursday morning (at 6 am :( ) I find out Cassidy has not slept at all (jet lag) and my mom was a little tired from last night (too much wine). I decided I would drive back to Houston after pushing everyone out the door at 8:30 (after a lovely breakfast) so that we could get to the airport and pick up Cassidy's bags before going to the clinic. This added another 40 minutes to the trip so I was definitely nervous about getting to my appointment on time.
Driving was SCARY!!! I haven't driven a car in months and the first time I get back behind the wheel I have to go 60 mph with really big trucks next to me. It took a while but with the help of cruise control I was able to get the hang of the high speeds, many traffic lanes and speeding cars. We succeeded in not getting lost (except when we got to the medical center) and not crashing the car! yay! Cassidy got his bags and I made it to my appointment on time. My blood pressure has been low lately but being stressed out for 4 hours while driving made it go back up to 115/68 :). Driving was not comfortable thanks to the pooka in my hip (bone marrow biopsy bruise) and it's still sore after 5 days!!! It's driving me nuts!
So my appointment on Thursday went well; I met my transplant doctor (he is from Romania) and I found out a little more about my disease. I found out that due to a certain messed up gene, my leukemia is not curable without the stem cell (also known as bone marrow) transplant. I am officially in remission and the goal is to keep me in remission before I have the transplant. He did not say why, but he was very stern when he said we do not want the leukemia to come back again. Hopefully Travis or Chelsea are matches and we can do the transplant next month, but if not then it might be a couple of months (and therefore a couple of chemo treatments) before they find a mathch on the registry. When the transplant process starts it should be approximately 4 months before I am in the OK zone. Then for the next 2 years we just cross our fingers and pray that it doesn't come back :) otherwise we gotta do it all over again. I start my first round of consolidation on Monday at 6:00 pm. I will go Monday and Tuesday for a 30 minute dose of chemo and for Monday, Tuesday and Wednesday I will have a 24 hour continuous dose of cytarabine chemo. Then I will start the recovery process again. I am hoping that my counts will be good enough by August so that I can go to Travis' graduation and see my family. I miss everyone and it would be so amazing to see them!
Friday was a long day as well. It started at 7:00 am at the clinic to get my blood drawn for my counts; they came back very good :) We met with my leukemia doctor (who is from Germany and very tall) to talk about the steps for consolidation and to get that process started. By the time we left the hospital is was 11:00 am and my mom and I were starving! We have to bring snacks with us all the time because we end up waiting and being there all day! My appointments on Monday start at 8:30am, 1:30pm to get my PICC line put into my arm again (so i won't get poked no more) and then chemotherapy at 6:00pm. That will be another long day. BUT! at least I get to go home :)
Speaking of home we have been shopping at IKEA for home furniture! We actually found a lot of really good things for the apartment for cheap prices:). On Friday we were there for 3 hours picking things out and then planning on coming back on Saturday with TIffany and her boyfriend Josh who has a truck. We picked out a couch, dresser/desk for the study, entertainment center, chair, side table, living room table...and other assortment of things and today (Saturday) loaded it all up onto Josh's truck and Janet's car. We got lucky; everything fit perfectly! Today was another 3 hour trip at IKEA (that store is way too big with way too many things to look at). We got the keys to the apartment today and filled the living room with boxes. Tomorrow we have to get beds, dining room table and other essential needs (from Target and Ross). Cassidy will start putting everything together while the girls shop :).
OH! Last night Cassidy and I watched the final Harry Potter movie. It was very good but sad that those stories are over. Tonight, we all went to the Alley Theatre and watched a play called "And There Was None". It was very good! I always enjoy going to the theatre and watching a show. :) Thank you Janet!
Well, off to bed to sleep before another busy day. Hopefully I'll have more free time to update more often. I will let you know how my next round of chemo goes!
love you all!
-Savy
Driving was SCARY!!! I haven't driven a car in months and the first time I get back behind the wheel I have to go 60 mph with really big trucks next to me. It took a while but with the help of cruise control I was able to get the hang of the high speeds, many traffic lanes and speeding cars. We succeeded in not getting lost (except when we got to the medical center) and not crashing the car! yay! Cassidy got his bags and I made it to my appointment on time. My blood pressure has been low lately but being stressed out for 4 hours while driving made it go back up to 115/68 :). Driving was not comfortable thanks to the pooka in my hip (bone marrow biopsy bruise) and it's still sore after 5 days!!! It's driving me nuts!
So my appointment on Thursday went well; I met my transplant doctor (he is from Romania) and I found out a little more about my disease. I found out that due to a certain messed up gene, my leukemia is not curable without the stem cell (also known as bone marrow) transplant. I am officially in remission and the goal is to keep me in remission before I have the transplant. He did not say why, but he was very stern when he said we do not want the leukemia to come back again. Hopefully Travis or Chelsea are matches and we can do the transplant next month, but if not then it might be a couple of months (and therefore a couple of chemo treatments) before they find a mathch on the registry. When the transplant process starts it should be approximately 4 months before I am in the OK zone. Then for the next 2 years we just cross our fingers and pray that it doesn't come back :) otherwise we gotta do it all over again. I start my first round of consolidation on Monday at 6:00 pm. I will go Monday and Tuesday for a 30 minute dose of chemo and for Monday, Tuesday and Wednesday I will have a 24 hour continuous dose of cytarabine chemo. Then I will start the recovery process again. I am hoping that my counts will be good enough by August so that I can go to Travis' graduation and see my family. I miss everyone and it would be so amazing to see them!
Friday was a long day as well. It started at 7:00 am at the clinic to get my blood drawn for my counts; they came back very good :) We met with my leukemia doctor (who is from Germany and very tall) to talk about the steps for consolidation and to get that process started. By the time we left the hospital is was 11:00 am and my mom and I were starving! We have to bring snacks with us all the time because we end up waiting and being there all day! My appointments on Monday start at 8:30am, 1:30pm to get my PICC line put into my arm again (so i won't get poked no more) and then chemotherapy at 6:00pm. That will be another long day. BUT! at least I get to go home :)
Speaking of home we have been shopping at IKEA for home furniture! We actually found a lot of really good things for the apartment for cheap prices:). On Friday we were there for 3 hours picking things out and then planning on coming back on Saturday with TIffany and her boyfriend Josh who has a truck. We picked out a couch, dresser/desk for the study, entertainment center, chair, side table, living room table...and other assortment of things and today (Saturday) loaded it all up onto Josh's truck and Janet's car. We got lucky; everything fit perfectly! Today was another 3 hour trip at IKEA (that store is way too big with way too many things to look at). We got the keys to the apartment today and filled the living room with boxes. Tomorrow we have to get beds, dining room table and other essential needs (from Target and Ross). Cassidy will start putting everything together while the girls shop :).
OH! Last night Cassidy and I watched the final Harry Potter movie. It was very good but sad that those stories are over. Tonight, we all went to the Alley Theatre and watched a play called "And There Was None". It was very good! I always enjoy going to the theatre and watching a show. :) Thank you Janet!
Well, off to bed to sleep before another busy day. Hopefully I'll have more free time to update more often. I will let you know how my next round of chemo goes!
love you all!
-Savy
Tuesday, July 12, 2011
My first day
Yesterday was my first day at MD Anderson. My mom and I arrived at the leukemia clinic at 7:30 am for new patient registration. By 9:30 they were done and I got weighed, measured and blood pressured to get me started for blood drawings. I have gained 5 pounds! I am also able to jog now, which is a nice feeling. I had to wait a little bit to get my blood drawn; there were so many people! All with cancer and all getting blood drawn. It's kind of overwhelming how many people there are here just with leukemia; let's just say i'm one of the youngest there. I got like 13 vials of blood drawn; it wasn't very fun. It was the first reality check for me to remember that I am sick and I have to do treatment even though I am feeling better...because it will come back :( The x-rayed my chest and then I had 2 hours to kill before my theirs bone marrow aspiration and biopsy. By now it is 11 am, with my biopsy scheduled at 1 pm. We ate lunch and talked to a social worker about apartments but he wasn't very helpful.
once again, i hate bone marrow biopsies. My blood pressure has been low and my heart rate has been high. They were going to give me versed which is like a stronger valium. My blood pressure was too low to get the full dose so they gave me half. Guess what flavor it was! ....cherry. >.< yuck. I still freaked out, it still hurt a lot (though they cared more about my comfort this time) and they all agreed after that I should be under anesthesia next time. THANK GOD. I was WAY too aware of the procedure to be happy, so either they make me loopy or knock me out because that experience just gets worse and worse every time. Now it hurts to lay on my back (so sleeping is difficult), to walk and pretty much move. I hate biopsies.
After that lovely procedure we waited to talk to my doctor and his physician's assistant. By now it is 3:30 pm. We talked to the PA who basically walked through with us the most likely route that I will be taking. While we wait for the stem cell people to find a match for me (hopefully chelsea or travis) I, unfortunately, cannot just wait months until it is time for the transplant. I will have to begin consolidation chemotherapy next Monday as an out patient (no more hospital bed!) and do chemo for 4 days (one type continuous and one type I do 3 times a week for an hour) then recover for 2-3 weeks to keep my cancer under control. I will do this over and over again until it is time for my transplant. THEN I will do a whole set of chemotherapy that is pretty much used to wipe out everything in my bone marrow before they put in my new stem cells from the donor. So, we need to find an apartment now so we can move in this weekend and have a livable place for when I start chemo. Hopefully today will be the last day of house hunting. We have to check out in 2 hours then move all our stuff over to Jan and Janet's house where we will be staying until we are moved in! Busy day, busy week...we have not had many chances to stop and relax! It will be nice when all this is over and we can relax in our new home.
As for Cassidy, he is flying standby and trying to get out oh Hawaii. He was supposed to go out last night but all the flights were full. So, with no bags or car, he had to sleep at the airport and hope for another try in the morning. He may have to fly through to Austin so we may road trip it down there to pick him up. So busy busy day today!
I have an appointment on Friday to talk with the stem cell doctor and GYN doctor about fertility and whatnot; basically I don't have the time to stop chemo to do the egg harvesting, but there have been cases of females getting pregnant after all the chemo so I guess when the time comes we cross our fingers.
Time to get ready. I love you all and will update when I find out more!
-Savy
once again, i hate bone marrow biopsies. My blood pressure has been low and my heart rate has been high. They were going to give me versed which is like a stronger valium. My blood pressure was too low to get the full dose so they gave me half. Guess what flavor it was! ....cherry. >.< yuck. I still freaked out, it still hurt a lot (though they cared more about my comfort this time) and they all agreed after that I should be under anesthesia next time. THANK GOD. I was WAY too aware of the procedure to be happy, so either they make me loopy or knock me out because that experience just gets worse and worse every time. Now it hurts to lay on my back (so sleeping is difficult), to walk and pretty much move. I hate biopsies.
After that lovely procedure we waited to talk to my doctor and his physician's assistant. By now it is 3:30 pm. We talked to the PA who basically walked through with us the most likely route that I will be taking. While we wait for the stem cell people to find a match for me (hopefully chelsea or travis) I, unfortunately, cannot just wait months until it is time for the transplant. I will have to begin consolidation chemotherapy next Monday as an out patient (no more hospital bed!) and do chemo for 4 days (one type continuous and one type I do 3 times a week for an hour) then recover for 2-3 weeks to keep my cancer under control. I will do this over and over again until it is time for my transplant. THEN I will do a whole set of chemotherapy that is pretty much used to wipe out everything in my bone marrow before they put in my new stem cells from the donor. So, we need to find an apartment now so we can move in this weekend and have a livable place for when I start chemo. Hopefully today will be the last day of house hunting. We have to check out in 2 hours then move all our stuff over to Jan and Janet's house where we will be staying until we are moved in! Busy day, busy week...we have not had many chances to stop and relax! It will be nice when all this is over and we can relax in our new home.
As for Cassidy, he is flying standby and trying to get out oh Hawaii. He was supposed to go out last night but all the flights were full. So, with no bags or car, he had to sleep at the airport and hope for another try in the morning. He may have to fly through to Austin so we may road trip it down there to pick him up. So busy busy day today!
I have an appointment on Friday to talk with the stem cell doctor and GYN doctor about fertility and whatnot; basically I don't have the time to stop chemo to do the egg harvesting, but there have been cases of females getting pregnant after all the chemo so I guess when the time comes we cross our fingers.
Time to get ready. I love you all and will update when I find out more!
-Savy
Sunday, July 10, 2011
My new home
Hi everyone; sorry it has been a couple of days since my last post. These past couple of days have been very long and busy. My mom and I landed in Houston Friday evening about 5:00pm. The flight wasn't too bad; we had a delay in San Fran airport but I was able to catch up on some sleep. Janet and Jan picked us up at the airport and took us to our hotel which is right next to the medical center. We went and got some yummy Italian food and then they showed us around the area. The town around the medical center is very beautiful; there are a lot of pretty green trees, beautiful fountains and cute shops around. There are also a couple of universities so there are a lot of college stuents and med students that live here. Hopefully that will make it easier for me and Cassidy to meet people.
On Saturday Janet picked us up in the morning (we slept in until 10:00 am!) and took us to this neat restaurant called Hungry's where we met Jan. My cousin Angel from Austin was driving up to meet us in Houston for the weekend, so before she got here my mom, Janet and I went driving around the neighborhoods looking for available apartments. Jan helped us find a couple of nice apartments and townhouses to call as well. After driving around a bit we met up with Angel and checked out this really nice, brand new apartment that is very close to the medical center. It is a little expensive so we are going to see if they have a 1 bed room available instead of getting the 2 bedroom. We have some places to see today so hopefully we find a nice place that is within the budget and near the med center. Cross your fingers!
Today Angel is picking us up and we will probably house hunt some more and then Janet will show us MD Anderson in the afternoon. Janet has CLL so she knows where the leukemia center is and approximately where my appointment wil be tomorrow morning. The hospital is massive so it will be good to know where we will be going so we don't get lost at 7:00 in the morning.
A friend of mine's uncle lives in Houston and they have agreed to let us borrow one of their cars for however long we need it. We will call them today to pick up their car which we will use until Cassidy's car gets here. That will be a big help. :)
I have been starting my exercises again...I am very weak so I need to try and develop a routine to do every morning. What I really hope to get and really need is an apartment with a gym in it; that way I can easily do my rehab and Cassidy and stay healthy while he is working and taking care of me. Unfortunately we found out yesterday that when he transfers to the Apple store in Houston he will get a deduction in pay and they won't let him be part-time. So we need to decide if he should work full-time and work 40 hour weeks and not be with me that much or get an even more deduction in pay and work part-time. It all depends on what the plan is for me, if/when i will be in the hospital and how much our rent will be. I hate that I can't work, go to school, or help out at all.
We have been lucky to have family so close and new friends to help us out and show us around. I am getting used to Houston and I do like the area we are in. Once Cassidy gets here and we have a car I think we will have fun exploring this huge city.
I will update tomorrow after my long day at the medical center. 7:30 am to about 5:00 pm! Hopefully only good news will be heard and a plan can be made :) i like having a plan.
I love you all and wish us luck finding the perfect place for us.
-Savy
On Saturday Janet picked us up in the morning (we slept in until 10:00 am!) and took us to this neat restaurant called Hungry's where we met Jan. My cousin Angel from Austin was driving up to meet us in Houston for the weekend, so before she got here my mom, Janet and I went driving around the neighborhoods looking for available apartments. Jan helped us find a couple of nice apartments and townhouses to call as well. After driving around a bit we met up with Angel and checked out this really nice, brand new apartment that is very close to the medical center. It is a little expensive so we are going to see if they have a 1 bed room available instead of getting the 2 bedroom. We have some places to see today so hopefully we find a nice place that is within the budget and near the med center. Cross your fingers!
Today Angel is picking us up and we will probably house hunt some more and then Janet will show us MD Anderson in the afternoon. Janet has CLL so she knows where the leukemia center is and approximately where my appointment wil be tomorrow morning. The hospital is massive so it will be good to know where we will be going so we don't get lost at 7:00 in the morning.
A friend of mine's uncle lives in Houston and they have agreed to let us borrow one of their cars for however long we need it. We will call them today to pick up their car which we will use until Cassidy's car gets here. That will be a big help. :)
I have been starting my exercises again...I am very weak so I need to try and develop a routine to do every morning. What I really hope to get and really need is an apartment with a gym in it; that way I can easily do my rehab and Cassidy and stay healthy while he is working and taking care of me. Unfortunately we found out yesterday that when he transfers to the Apple store in Houston he will get a deduction in pay and they won't let him be part-time. So we need to decide if he should work full-time and work 40 hour weeks and not be with me that much or get an even more deduction in pay and work part-time. It all depends on what the plan is for me, if/when i will be in the hospital and how much our rent will be. I hate that I can't work, go to school, or help out at all.
We have been lucky to have family so close and new friends to help us out and show us around. I am getting used to Houston and I do like the area we are in. Once Cassidy gets here and we have a car I think we will have fun exploring this huge city.
I will update tomorrow after my long day at the medical center. 7:30 am to about 5:00 pm! Hopefully only good news will be heard and a plan can be made :) i like having a plan.
I love you all and wish us luck finding the perfect place for us.
-Savy
Thursday, July 7, 2011
I'm leaving on a jet plane, I don't know when I'll be back again
Last night I said goodbye to all my friends on Oahu: we went to wahoos and took over the restaurant with 20 people. Good food, good company, good stories. My friend Auika from Kauai is on Oahu so I got to see her for the first time in years. It was sad to say bye to her after finally being able to hang out. Leaving wahoos last night really made me see the good people Cassidy and I had surrounded ourselves with. We will miss them all so much. I hope we can make some good friends in Texas.
I leave tonight with my mom at 10:54 pm to San fransisco then straight to Houston. Cassidy doesn't leave until Monday night; this will be the first time since getting cancer that I will be away from him. It makes me sad but I am much stronger now and I just hope I can get through my bone marrow biopsy without freaking out too much... He has always been there for me to squeeze his hand. My appointment was moved from Tuesday morning to Monday morning at 7:30 am. I will be there until around 5 or 6 pm. Ugh. I have labs, blood drawings and biopies to look forward to :( hopefully they test me for my HLA type on monday too; I would like to find out soon if Chelsea and travis are matches with me. Time will tell.
I am finishing up packing...there isn't that much to do. My mom gets in at 12:30 today to help finish up packing and get some boxes shipped to Houston. We have a lot of stuff; 4 suitcases, 4 duffle bags, 4 bags for carryon, 1 guitar, 4 boxes to ship plus an amp we probably will have to ship...and a load of goodwill stuff to take. We still have some things to sell that Cassidy can hopefully make some money on. He is shipping his car over (for a hefty price of $1547), which will be nice to have in Texas. He is working out a transfer with Apple so he will have a job when he gets there :)
Okay, off to get ready for my last day on the island...I hope to get some beach time in today. I will update when I am in Texas! Love and miss you all,
-Savy
I leave tonight with my mom at 10:54 pm to San fransisco then straight to Houston. Cassidy doesn't leave until Monday night; this will be the first time since getting cancer that I will be away from him. It makes me sad but I am much stronger now and I just hope I can get through my bone marrow biopsy without freaking out too much... He has always been there for me to squeeze his hand. My appointment was moved from Tuesday morning to Monday morning at 7:30 am. I will be there until around 5 or 6 pm. Ugh. I have labs, blood drawings and biopies to look forward to :( hopefully they test me for my HLA type on monday too; I would like to find out soon if Chelsea and travis are matches with me. Time will tell.
I am finishing up packing...there isn't that much to do. My mom gets in at 12:30 today to help finish up packing and get some boxes shipped to Houston. We have a lot of stuff; 4 suitcases, 4 duffle bags, 4 bags for carryon, 1 guitar, 4 boxes to ship plus an amp we probably will have to ship...and a load of goodwill stuff to take. We still have some things to sell that Cassidy can hopefully make some money on. He is shipping his car over (for a hefty price of $1547), which will be nice to have in Texas. He is working out a transfer with Apple so he will have a job when he gets there :)
Okay, off to get ready for my last day on the island...I hope to get some beach time in today. I will update when I am in Texas! Love and miss you all,
-Savy
Wednesday, July 6, 2011
Remission?
Yesterday was a good day! I am feeling stronger everyday and eating eating eating in hopes of gaining weight! I went to the doctors yesterday and had my blood drawn to see what my counts are. I am happy to say they were all normal and my doc said I'm just like everyone else and he expects me to be in remission when my bone marrow gets tested again in Houston. That is VERY good news! This means that hopefully the process for my bone marrow transplant or egg harvesting can begin as soon as i get to MD Anderson. The thing that is the hardest to grab is that I am cancer-free but I won't be forever. It sucks knowing that I have to keep doing this because my cancer is aggressive and will come back; that I not done with chemotherapy and being in the hospital. I just hope they keep me out of the hospital for as long as possible. I'm still trying to getr my body back to normal from being in a bed for three weeks. It's hard leaving my friends and my jobs; I loved where I worked and I'm nervous that I won't meet anyone in Houston or that I won't know anyone but my doctors and nurses because that's where I'll be all the time. Hopefully it won't be too hard; I am thankful that my family will be there by my side and with me the entire time. Hopefully my brother or sister is a match so they have to live with me for a bit :) We will see in a couple of weeks!
Cassidy and I are having a going away party/thing at Wahoo's tonight to say goodbye to our friends. I hope to see a lot of my friends! I will miss everyone :( i went to my jobs yesterday to say goodbye; it's hard leaving them! I was so fortunate to have the experiences I had and work with amazing people that helped me learn more and become more determined to become a physical therapist. Thank you Linda for teaching me these past couple of years. I am so thankful for everything that I learned and I am excited for everything that I still have to learn! I will miss the crazy life at Diamond Head Chiropractic as well; I hope you all do well and I hope to be as skilled as everyone in that clinic is. I will miss working with you all and I hope to be back one day :)
My mom comes up tomorrow morning to help finish up the rest of packing and then fly out with me to Houston. I can't believe I leave tomorrow; everything seems to be going so fast! Cassidy will be joining us on Tuesday; I hope he can make it to the hospital for my appointment...I need his hand to squeeze during my bone marrow biopsy. :( Not very excited for my third one. That will be a long day for sure! I am excited to get to Houston to get started at MD Anderson...I've heard a lot of good things about the hospital and I know they are going to make me all better :)
I just want to thank everyone who has been praying for me and sending positive energy my way. It has helped a lot to get through these past 4 weeks and I will need them to get through these next couple of months. I love you all and I hope to see some familiar faces in Houston very soon!
-love always, savy
Cassidy and I are having a going away party/thing at Wahoo's tonight to say goodbye to our friends. I hope to see a lot of my friends! I will miss everyone :( i went to my jobs yesterday to say goodbye; it's hard leaving them! I was so fortunate to have the experiences I had and work with amazing people that helped me learn more and become more determined to become a physical therapist. Thank you Linda for teaching me these past couple of years. I am so thankful for everything that I learned and I am excited for everything that I still have to learn! I will miss the crazy life at Diamond Head Chiropractic as well; I hope you all do well and I hope to be as skilled as everyone in that clinic is. I will miss working with you all and I hope to be back one day :)
My mom comes up tomorrow morning to help finish up the rest of packing and then fly out with me to Houston. I can't believe I leave tomorrow; everything seems to be going so fast! Cassidy will be joining us on Tuesday; I hope he can make it to the hospital for my appointment...I need his hand to squeeze during my bone marrow biopsy. :( Not very excited for my third one. That will be a long day for sure! I am excited to get to Houston to get started at MD Anderson...I've heard a lot of good things about the hospital and I know they are going to make me all better :)
I just want to thank everyone who has been praying for me and sending positive energy my way. It has helped a lot to get through these past 4 weeks and I will need them to get through these next couple of months. I love you all and I hope to see some familiar faces in Houston very soon!
-love always, savy
Monday, July 4, 2011
So much packing...
So my parents andBucha have been here this weekend to help pack up our room and get ready for the big move on Thursday (three more days!!). We have SO MUCH stuff!! We have three or four big suitcases packed for Kauai plus multiple boxes ready to be shipped. Me and Cassidy have four big suitcases and a box to ship to Houston and we still need another suitcase! We have sold pretty much everything; just have a few things left to get rid of. We all spent yesterday packing and there is still much to do. Today Cassidy is going to work (and get paid double since it's a holiday), mom and Bucha are going to clean and me and my dad are going to lunch and then get worked on this afternoon by Jesse.
I still haven't slept through a whole night yet. I don't know if it is because I got used to the nurses waking me up throughout the night for three weeks or if it's something else. I noticed that I don't regulate mmy temperature very well anymore. I get cold and hot very quickly and i can never be in a comfortable environment. While sleeping I used to just stay in one position and my body would get so hot and do nothing to cool me off but sweat. So I would wake up drenched because I haven't moved off my back in 5 hours. So last night I managed to stay cool but that required me being awake to move. It's very weird.
I am supposed to get my blood drawn tomorrow and I am very nervous; the last time I went to get my blood drawn my WBC count had risen from 70,000 to 198,000 and I had to start chemotherapy that day. I am hoping for good results and if anything I might need a blood transfusion. I will let you all know what my results are when I fin out. Wish me luck!
Happy fourth of July! We are probably going to go down to Waikiki and watch the fireworks. Everyone leaves tomorrow morning; I will miss my Bucha and dad :( /i hope to see them in Houston soon. I also miss my sister and Maile a lot. It hurts knowing I can't see my niece until I'm all better :(:( I hope to see Chelsea in Houston soon...we have such a good time hanging out with each other :)
I have been eating a lot to try and gain back the 15lbs I lost in the hospital. Luckily I have a huge appetite and my throat is completely better :D My toe is healig and slowly getting better as well. The rash is pretty much gone and it's nice to know that my immune system is workinng again. However, I get tired so easily. I was folding sheets and that put me out of breath. My heart pounds in my chest all the time and I get exhausted. I have to remember to take it easy.
well, I love you all and hope for good results tomorrow. I hope you have a great holiday and I will write again tomorrow :)
with love, savy
I still haven't slept through a whole night yet. I don't know if it is because I got used to the nurses waking me up throughout the night for three weeks or if it's something else. I noticed that I don't regulate mmy temperature very well anymore. I get cold and hot very quickly and i can never be in a comfortable environment. While sleeping I used to just stay in one position and my body would get so hot and do nothing to cool me off but sweat. So I would wake up drenched because I haven't moved off my back in 5 hours. So last night I managed to stay cool but that required me being awake to move. It's very weird.
I am supposed to get my blood drawn tomorrow and I am very nervous; the last time I went to get my blood drawn my WBC count had risen from 70,000 to 198,000 and I had to start chemotherapy that day. I am hoping for good results and if anything I might need a blood transfusion. I will let you all know what my results are when I fin out. Wish me luck!
Happy fourth of July! We are probably going to go down to Waikiki and watch the fireworks. Everyone leaves tomorrow morning; I will miss my Bucha and dad :( /i hope to see them in Houston soon. I also miss my sister and Maile a lot. It hurts knowing I can't see my niece until I'm all better :(:( I hope to see Chelsea in Houston soon...we have such a good time hanging out with each other :)
I have been eating a lot to try and gain back the 15lbs I lost in the hospital. Luckily I have a huge appetite and my throat is completely better :D My toe is healig and slowly getting better as well. The rash is pretty much gone and it's nice to know that my immune system is workinng again. However, I get tired so easily. I was folding sheets and that put me out of breath. My heart pounds in my chest all the time and I get exhausted. I have to remember to take it easy.
well, I love you all and hope for good results tomorrow. I hope you have a great holiday and I will write again tomorrow :)
with love, savy
Sunday, July 3, 2011
The next phase begins...
So a lot has happened in two days. From Thursday to Friday I was so happy to hear about my biopsy results. My Doc had mentioned going home Saturday and I was more than ready to go. What I didn't expect when Friday came along was how good my counts were (pretty much doubled since the day before) and that they were discharging me THAT day! It was out of nowhere! The nurses didn't even know. Cassidy was at work and supposed to be there until 10:00pm that night but luckily Apple let him off at 6:00pm; that gave me and Bucha 3 hours to clean and pack up my room! It amazed me how much stuff I had accumulated in 3 weeks from packages and my mother (she bought a bunch of blankets and pillows from Ross when she was at the hospital my first week). After waiting an hour for an escort to wheel me to the front with Bucha trailing behind with a cart full of our stuff, we were able to load everything into Cassidy's car and head home.
It was AMAZING sleeping in my own bed and not getting woken up throughout the night (though I did wake up around 5am just because I was used to it). We got up and ran some errands and took 2 naps before my parents got in around 2-3pm. I had so much more energy just catching up on sleep. As for eating, I had a bowl of cereal for breakfast and a WHOLE cheeseburger for lunch. It feels so good eating again and NOT getting sick :) High carb, high protein diet and I am going to try my best to gain some weight before I start my next round of chemo.
My mom had an appointment at my job Diamond Head Chiropractic so I went with her to get some muscle work done cause I was all sorts of messed up from being in a hospital bed for 3 weeks. Before working on me, I was able to get some energy work done on me by Lynette who teaches pilates next door. It was very cool and she is giving me some books to read about the healing powers of spirituality and energy. She told me I need to focus my energy to myself to allow my body to heal. It will be very interesting to read these books. After that I got worked on by Jesse. I found out a lot about what was going on in the office and the many many changes that were occurring there. That and me getting cancer were definitely wearing Jesse out. I feel so bad because I loved working there and it hurts knowing that I can't help him through this hard time because I have to leave. He did some work on me, definitely hitting some spots that I've held a lot of emotion in. It is definitely hard to let go of all the pain and changes that my body has gone through these past 3 weeks. Jesse is slowly getting me to let go of it all and help get the pain out of my body. I will be going back Monday to see him and let him finish up and hopefully get my body ready for round two in Houston.
We had a lovely dinner at Assagio's with my mom, dad, Bucha and Cassidy. I'm definitely getting my full appetite back and it feels great to get hungry again.
It's definitely getting hard when i think about leaving to Houston. I am going to miss my sister and Maile so much. When they leave me messages on my phone I cry because I know it's going to be at least a year before I'm allowed to see my niece again. It also is sinking in more and more everyday that I have cancer and that my life will forever be changed; for the good or bad I don't know yet. I know that this experience will change me and my plans for my life...I know that nothing is planned and supposed to happen...It's just hard because I did haver a plan for myself; to graduate and get into Physical Therapy school. However, I can't control my life so I know I have to take this challenge and learn everything I can from it. I just don't know what the lesson is yet....maybe one day I will understand why all of this happened.
I am, again, so thankful for all of your support through this difficult time in my life. It scares me so much and makes me sad at times but I do my best to keep my head up and smile. Sometimes it's hard to do it but I always have Cassidy besides me to lift me up when I am down. Thank you for all of your positive energy. I need it. I hope everyone is well and I will write again soon. I love you all.
-Savy
It was AMAZING sleeping in my own bed and not getting woken up throughout the night (though I did wake up around 5am just because I was used to it). We got up and ran some errands and took 2 naps before my parents got in around 2-3pm. I had so much more energy just catching up on sleep. As for eating, I had a bowl of cereal for breakfast and a WHOLE cheeseburger for lunch. It feels so good eating again and NOT getting sick :) High carb, high protein diet and I am going to try my best to gain some weight before I start my next round of chemo.
My mom had an appointment at my job Diamond Head Chiropractic so I went with her to get some muscle work done cause I was all sorts of messed up from being in a hospital bed for 3 weeks. Before working on me, I was able to get some energy work done on me by Lynette who teaches pilates next door. It was very cool and she is giving me some books to read about the healing powers of spirituality and energy. She told me I need to focus my energy to myself to allow my body to heal. It will be very interesting to read these books. After that I got worked on by Jesse. I found out a lot about what was going on in the office and the many many changes that were occurring there. That and me getting cancer were definitely wearing Jesse out. I feel so bad because I loved working there and it hurts knowing that I can't help him through this hard time because I have to leave. He did some work on me, definitely hitting some spots that I've held a lot of emotion in. It is definitely hard to let go of all the pain and changes that my body has gone through these past 3 weeks. Jesse is slowly getting me to let go of it all and help get the pain out of my body. I will be going back Monday to see him and let him finish up and hopefully get my body ready for round two in Houston.
We had a lovely dinner at Assagio's with my mom, dad, Bucha and Cassidy. I'm definitely getting my full appetite back and it feels great to get hungry again.
It's definitely getting hard when i think about leaving to Houston. I am going to miss my sister and Maile so much. When they leave me messages on my phone I cry because I know it's going to be at least a year before I'm allowed to see my niece again. It also is sinking in more and more everyday that I have cancer and that my life will forever be changed; for the good or bad I don't know yet. I know that this experience will change me and my plans for my life...I know that nothing is planned and supposed to happen...It's just hard because I did haver a plan for myself; to graduate and get into Physical Therapy school. However, I can't control my life so I know I have to take this challenge and learn everything I can from it. I just don't know what the lesson is yet....maybe one day I will understand why all of this happened.
I am, again, so thankful for all of your support through this difficult time in my life. It scares me so much and makes me sad at times but I do my best to keep my head up and smile. Sometimes it's hard to do it but I always have Cassidy besides me to lift me up when I am down. Thank you for all of your positive energy. I need it. I hope everyone is well and I will write again soon. I love you all.
-Savy
Friday, July 1, 2011
Only good news today
So, my day started like the past three weeks; get woken up around 5 or 6 am to get my blood drawn and then try and go back to sleep and hope my IV machine doesn't beep. By 8 or 8:30 I'm up because breakfast is delivered and today I ate a blueberry muffin (not much but at least I ate it). At 9:00 my nurse came in with wonderful news; all my counts had gone up, some actually doubled!! So everyone can take their masks off and I can actually see what my nurses and doctors look like :P Two of my classmates that have been in my college courses for 3 years stopped by for a couple hours to visit. That was nice to hang out :) My back unfortunately locked up so I took my muscle relaxant and a massage therapist that works at one of my jobs came by and loosened me up a bit. THank you Lisa! Two more classmates came by after and it was again nice to hang out with my friends again.
Now, the really good news is not only am i off my IV and off my heavy duty antibiotics, I'm also being SENT HOME today!!! We were all expecting me to leave tomorrow but the doc said I could go today! Me and Bucha packed up and Cassidy worked it out with his job to work a half day so he can come pick me up in...about 30 minutes :) I'm SOOOOOOOO excited! No more beeing, being woken up at night and no more hospital bed!
I'm feeling pretty good but my back is killing me. I'm getting my appetite back slowly and I'll get my energy back up as well. My mom and dad come up tomorrow for the weekend so i am VERY ecited to see them :) It's been great hanging out with bucha; she has been a great help to me and I love her so much for being here with me.
I leave for HOuston on thursday with my mom and cassidy is working on his ticket, job transfer and shipping his car out to Houston. He has been super busy selling everything of ours and I am so thankful to have him with me. I would have been lost without him and everything he has done for me!
My first appointment at MD Anderson is July 12th. I will get my blood checked on tuesday before I leave to make sure my blood counts are still good and if i need a possible blood transfusion. Everything is starting to move fast so I hope we can finish everything and be prepared to leave on thursday!
Thank you everyone for your support; I know i couldn't have gotten these amazing numbers with out all of your prayers and positive energy sent my way. Thank you! I love you all and I'll update through the weekend to see how i handle being outside again :)
love always,
-Savy
Now, the really good news is not only am i off my IV and off my heavy duty antibiotics, I'm also being SENT HOME today!!! We were all expecting me to leave tomorrow but the doc said I could go today! Me and Bucha packed up and Cassidy worked it out with his job to work a half day so he can come pick me up in...about 30 minutes :) I'm SOOOOOOOO excited! No more beeing, being woken up at night and no more hospital bed!
I'm feeling pretty good but my back is killing me. I'm getting my appetite back slowly and I'll get my energy back up as well. My mom and dad come up tomorrow for the weekend so i am VERY ecited to see them :) It's been great hanging out with bucha; she has been a great help to me and I love her so much for being here with me.
I leave for HOuston on thursday with my mom and cassidy is working on his ticket, job transfer and shipping his car out to Houston. He has been super busy selling everything of ours and I am so thankful to have him with me. I would have been lost without him and everything he has done for me!
My first appointment at MD Anderson is July 12th. I will get my blood checked on tuesday before I leave to make sure my blood counts are still good and if i need a possible blood transfusion. Everything is starting to move fast so I hope we can finish everything and be prepared to leave on thursday!
Thank you everyone for your support; I know i couldn't have gotten these amazing numbers with out all of your prayers and positive energy sent my way. Thank you! I love you all and I'll update through the weekend to see how i handle being outside again :)
love always,
-Savy
Subscribe to:
Posts (Atom)